What life is like for Brok

So I know I just posted & Please read that one too but this is so exciting I had to post!

We have been having some issues with therapists... Brok is on his 2nd PT (physical therapist) & we had been having some serious issues with our OT (occupational therapist) so I called my case manager for DDD (department of developmental disabilities) & discussed our options... Basically our new PT is awesome & has done a lot of figuring with Brok to see what works & doesn't... Everyone has been saying that he has sensory issues- at first they thought it was aversions to sensory input (ie standing on his toes to avoid the whole foot on the floor) but she realized the other day through a simple activity- dried beans in a bucket big enough for him to sit in- that he CRAVES sensory input.

Well we started with a new OT today & he gave the best explanation ever for why he is the way he is! & those of you who know Brok will agree that it makes complete sense!

Imagine that you have just gotten off a rollercoaster- you want more & you feel as though you are still moving- still have that adrenaline pumping- That is what Brok is like 24:7. His body doesn't know how to regulate that input- his brain keeps saying I need that movement- therefore he moves- but he can't satisfy the need because he can't move efficiently or have that lasting effect- so he just keeps going to try to satisfy that need! When Brok does therapy- we can't keep him still- UNLESS- he has that input (ie swinging, rocking, bouncing on a ball)

The OT said that the reason Brok can't learn to do things normal is because there is that need & he related it to feeling hungry or having to pee- you can't focus on anything because you have that sensation- well once that sensation is gone you can focus on what you need to do- Brok has the sensation he needs to move constantly & that he needs that input so he can't focus on developing because he can't sit still- kinda like ADHD or ADD but not...

Anyway so to "cure" that he is going to start with finding where Brok's breaking point is- swinging intensely for 15min or bouncing- giving him an outlet for that sensory need & fulfilling it in a more effective way- & once he figures out how much he can/can't take- he will work down from there to make him "normal" or as close to normal as possible. He is also going to give him structured play- like stacking blocks & shape sorting- things a normal 2yr old can do-

Brok also likes to be in control of his environment- he will freak out when his therapists work with him making him do things because he is not in control... Another related thing to his sensory issue- he can't control it!

Basically with a lot of working- & definately won't be overnight changes- he can become just like everyo0ne else! PHEW what a relief! We have a referral now to go to the developmental pediatrician so that we can learn if for sure he does have any issues but it's looking like there is a strong possiblity that he really doesn't!

YAY for people who know what htey are talking about! How a child gets like that I will never know but I can't deny it has been an experience we will never forget! I love my special kid!